The information on this page is from NHS England and the UK Government
Latest update : We are concerned that members of our neuro community are not included in NHS England's list of those at particularly high risk EG patients living with MND and Brain Injury. We are working with the Neurological Alliance to gain some clarity on this.
Health Advice - NHS England
"COVID-19 is a new illness that can affect your lungs and airways. It's caused by a virus called coronavirus."
Click here for general information
Advice from UK Government on social distancing and protecting older and vulnerable people
Click here for information
Our community is considered high risk and it is important to know that some people do not show any clear symptoms. Some of our people may not present with clear symptoms because of their complex condition/s.
The NHS will contact you from Monday 23 March until Sunday 29 March 2020 if you are at particularly high risk of getting seriously ill with coronavirus. You'll be given specific advice about what to do.
Do not contact your GP or healthcare team at this stage – wait to be contacted.
If you aren't contacted and you have any concerns after the 23 March 2020 seek advice from your treating clinician or specialist team.
If a person is told they must stay in the place where they live and 'self isolate' it may not be possible for many in our community to follow official advice. EG if they have carers or live in a care home. Carers must keep themselves protected from infection. Click here for advice from Carers UK
It's very important to keep a safe distance as much as possible. If a person lives in a care home this will be managed by those in charge.
If a person receives a care package and their support is interrupted or lost, contact with the local authority must be made as a matter of urgency. The Government is proposing big changes to health and social care through the Coronavirus Act 2020 click here to read about this
Click here to read about the changes affecting CHC funding and social care proposed in the Coronavirus Act.
What you can do to help yourself
Hands must be washed regularly and thoroughly. Do not share towels. Make sure that all surfaces especially in the kitchen and bathroom are as clean as possible. Use antibacterial soaps, hand washes and cleaning products.
Keep yourself hydrated and fed.
Make sure that you have enough medication. We know that some medications are experiencing shortages and delays IE Epilepsy. Speak to your treating clinician if you are worried that you may not have the medications you need.
If you can, maintain your usual exercise routine, or find new ones using online and YouTube channels.
Do not start an exercise programme if it isn't something you usually do.
Read books, listen to audio books and play games.
Watch television and listen to the radio. Stay up to date with what's going on in the outside world.
Stay in touch with others through social media, the telephone and the internet. New groups to support people at risk of becoming isolated are already being set up.
Enjoy the free theatre, music and arts performances online - you can visit some of the best museums and arts galleries around the world completely for free.
Keep in regular contact with friends and family.
There are new community groups who are willing to do shopping and get prescriptions.
Click here for Covid-19 Mutual Aid
Local businesses who need our support are setting up to do deliveries EG vegetables, bread and of course milk!
The Gtr Mcr Neuro Alliance is changing the way it works on social media and we'll be available for live chat and support - so if nothing else you can talk to us!
More than any other patient group neuro is well used to self care and managing with limited resources. We can get through this.
#staysafe friends and #staywell