Coronavirus (COVID-19)

Health Advice - NHS England

"COVID-19 is a new illness... It's caused by a virus called coronavirus." There is also a new strain that is more easily spread and affects the young as well as the old.

We know that there are many adults living with long term illness called Long Covid and growing numbers of children suffering from Coronavirus and Long Covid.

Click here for general information

Advice from UK Government on social distancing and protecting older and vulnerable people

Click here for information

Advice for people who provide unpaid care to others IE Carers

Click here to find out how to keep yourself safe and what to do if you need help

Guidance for people who receive care via a Direct Payment

Click here to find out what to do if care is interrupted or has to stop

Guidance for people who deliver care that is paid for IE social care

Click here ​to find out how to protect yourself and those you work with either through domiciliary care or as a PA.

Our community is considered high risk and it is important to know that some people do not show any clear symptoms. Some of our people may not present with clear symptoms because of their complex condition/s. Growing numbers of people are reporting symptoms not on the NHS England and UK Government list. We know that there are many others who are suffering 'waxing and waning' and have had periods of illness for many weeks and months. Many people are now being diagnosed with Long Covid. Long Covid clinics are being organised in the north west and one will be in Gtr Manchester. You can be referred via a GP.

We recommend that you consider reporting your symptoms on the C-19 Covid Symptom Study App. This gives people the chance to report a wider range of symptoms and illness on a daily basis and allows King's College London to provide information to the NHS.

Symptoms regularly reported to us include :

  • headaches that persist, are very painful and often behind the eyes

  • stomach upsets including Diarrhoea and vomiting

  • skin tingles and burning

  • chronic pain in muscles and bones

  • rashes on the scalp, feet and hands

  • bladder pain and incontinence

  • sore throat

  • feeling weak and confused

  • poor sleep and extreme fatigue

  • loose teeth and a sore mouth often with ulcers

  • congested nose and sinus pain

  • dizziness and brain fog

  • poor spatial awareness particularly in the dark

  • sensitive to bright light - particularly screens IE phones

  • sensitive to noise

  • Tinnitus and deafness in the left ear

  • hair loss

  • dry skin and itching
     

We remain very concerned that many people living with neuro weren't included in the NHS England 'particularly high risk' list.

If you are considered at particularly high risk you will be contacted and told to shield. For many in our community there is still confusion around this so if you feel safer shielding then do so, but please take care of your mental health, reach out for support and conversation and if you need help, ask for it.

If you haven't been contacted and you have any concerns seek advice from your treating clinician or specialist team. You can also contact individual charities and organisations supporting our community.

There's important information for people living with Endocrine issues and regularly taking steroids Click here

 

Friends we can get through this. We believe that the neuro community is well used to self care and managing with limited resources.

So let's help ourselves stay safe and well Click here

#staysafestaywell

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