Coronavirus Act 2020

The Government has made big changes to how the NHS and local authorities manage health and social care during the Coronavirus pandemic.

This is sensible but has implications for patients, their families and carers. Some of them very serious.

Despite the statement from the BMA, CQC and RCGP the media reports that 10% of care homes asked staff to get patients to sign Do Not Resuscitate and ResPECT forms and that some, invited GPs to discuss DNRs with elderly and vulnerable people. Often without their families or carers being involved or even notified. This is very worrying as we don't believe any group is less entitled to critical care than any other. 

There's also increased reporting from patients and carers that the Care Act 2014 and its 2018 amendment is being sidelined to meet demands on services and workforce.

We don't believe this is right.

Vulnerable, sick and disabled people have fought for many years to gain the rights they have and this is not the time to take them away.

There has to be a reasonable time limit on the new government powers and people already receiving health and social care must not be abandoned.

In June 2020, as part of a group organised by our national organisation the Neurological Alliance, we wrote to ADASS the Association of Directors of Adult Social Services about our concerns. We have yet to receive a reply.

The Coronavirus Act 2020 has to be fair - for everyone.


We're also asking NHS England and the Government when we can expect a #NeuroRestart to cancelled treatment and services.

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